Special Topic Course: Finding Purpose, Rediscovering Hope: Not Merely Living with Cerebral Palsy, but Learning to Live Their Best.
Speakers: Jan Brunstrom-Hernandez, MD
Topic: Finding Purpose, Rediscovering Hope: Not Merely Living with Cerebral Palsy, but Learning to Live Their Best.
Course Description: The term Cerebral Palsy (CP) refers to a heterogeneous group of permanent and currently incurable neurodevelopmental disorders of movement and posture that limit a child’s activity, and most children also have one or more comorbidities that further limit their function and quality of life. CP is the most common physical disability in childhood with a world-wide prevalence of about 1 per 500, and a United states prevalence of 1 in 323 children. CP is due to a non-progressive disturbance of fetal, neonatal or infant brain development, but in most cases the precise cause of the brain injury remains unknown. CP is diagnosed clinically, based on history, physical and neurological examination, and new clinical tools that allow detection of motor abnormalities in neonates and young infants, combined with state of the art brain MRIs, now make it possible to diagnose CP at much younger ages than ever before. Communicating a difficult diagnosis to parents/ caregivers (of CP or of at risk for CP) requires time, patience and compassion. Early intervention starts in the NICU where therapists (PT, OT, SLP, music therapists) and nurses play a vital role in helping these little patients and their families garner strategy, strength and courage to move forward on a new path where they can find purpose and rediscover hope.
Speaker Bio: Jan Brunstrom-Hernandez, MD is a wife, mother, pediatric neurologist, cerebral palsy specialist and owner/ director of 1 CP Place PLLC-a unique cerebral palsy clinic in Plano Texas devoted to helping youth with CP live their very best lives. Over the past 20 years, Dr. Jan has taken care of more than 2000 patients with cerebral palsy. She was the founding director of the Pediatric Neurology Cerebral Palsy Center at Washington University School of Medicine and St. Louis Children’s Hospital from 1998 to 2014, and medical director of the Carol and Paul Hatfield Sports and Rehabilitation Program at St. Louis Children’s Hospital from 2003 to 2014, before she and her husband moved to the Dallas – Fort Worth metroplex to pursue a longstanding dream of building a freestanding cerebral palsy clinic and adaptive sports program for youth with cerebral palsy. Dr. Jan graduated from the Medical College of Virginia at Virginia Commonwealth University in Richmond, Virginia and completed her pediatric neurology training at St. Louis Children’s Hospital at Washington University School of Medicine. Dr. Jan has first hand experience living with cerebral palsy- spastic diplegia- as a result of being born 3 months prematurely. Dr. Jan is a steering committee member of the international Multidisciplinary Prevention and Cure Team for Cerebral Palsy (IMPACT for CP), and a member of the Scientific Advisory Committee for the Cerebral Palsy Foundation in New York.
0-8 min: Define cerebral palsy
8-15 min: Discussion of co-morbidities associated with cerebral palsy
15-25 min: Discuss strategies to communicate difficult diagnoses to parents
25-32 min: Discuss speaker’s personal journey with cerebral palsy
58-61 min: Learning Assessment
Jan Brunstrom-Hernandez, MD
Financial Disclosures: Director/ Owner of 1CP Place PLLC- a unique clinic for youths (infant through young adult) with cerebral palsy and similar childhood motor disabilities.
Nonfinancial disclosures: No relevant disclosures.
Conflict of Interest: There is no conflict of interest for anyone with the ability to control content for this activity.
Continuing Education Information*
AOTA CEUs: National Association of Neonatal Therapists® (NANT) is an AOTA Approved Provider of professional development. This Distance-Learning Independent Course is offered at 0.1 CEUs (Intermediate level, Occupational Therapy Service Delivery & Professional Issues). AOTA does not endorse specific course content, products, or clinical procedures.
ASHA CEUs: Learners must complete the entire course in order to receive ASHA CEUs. No partial credit awarded. ASHA CE Provider approval and use of the Brand Block does not imply endorsement of course content, specific products or clinical procedures.
ASHA CE Registry users: NANT will submit your ASHA CEU credit to ASHA on your behalf. ASHA CEUs may take up to 100 days to appear on your ASHA Transcript.
Non-ASHA CE Registry users: Maintain your course records and please keep your registry status current in your NANT account. Update your NANT account with your ASHA number if your registry status changes. NANT is not responsible for tracking your registry usage.
PT CE Credit: This activity has been approved by the Texas Board of Physical Therapy Examiners for 1.0 CCUs for PTs and PTAs.
NANT is recognized by the New York State Education Department’s State Board for Physical Therapy as an approved provider of physical therapy and physical therapist assistant continuing education.
* If you attended this presentation at NANT 9, you can still receive CE Credit by completing this online version.
Questions regarding CE credit should be directed to the National Association of Neonatal Therapists at [email protected] or (866) 999-5524.