Direction Without a Map: Clinical Approach and Considerations for Managing Patients with Rare Diagnoses in the NICU

Course Description

This course will provide education and resources for therapists in the Neonatal Intensive Care Unit (NICU) based on evidence and expert opinion for rare diagnoses, including Pierre Robin Sequence (PRS), Osteogenesis Imperfecta (OI), neuromuscular conditions, and Epidermolysis Bullosa (EB).

Target Audience
OT, SLP, PT, RN, MD, and Neonatal professionals

Level
Intermediate

Objectives

1. Define at least 3 identifying signs and symptoms that patients may exhibit with Pierre Robin Sequence, Osteogenesis Imperfecta (OI), neuromuscular conditions, and Epidermolysis Bullosa (EB).
2. Differentiate therapeutic support and intervention that could be utilized for patients with Pierre Robin Sequence, Osteogenesis Imperfecta (OI), neuromuscular conditions, and Epidermolysis Bullosa (EB) in the NICU. 
3. Identify barriers and conductive qualities for implementation of therapeutic strategies and interventions for patients with Pierre Robin Sequence, Osteogenesis Imperfecta (OI), neuromuscular conditions, and Epidermolysis Bullosa (EB) within the learner’s specific NICU.   

Instructional Method
Lecture, videos, case studies, and handouts. Learning assessment and course evaluation follow the course.

Course Completion Requirements
The learner must view the entire webinar, complete the course evaluation, and complete the post-webinar learning assessment with at least an 80% to receive education credit. Login and logout times are recorded and documented. Following course completion, learners receive a CE certificate and a zip file containing the necessary information to submit for education credit to their individual state, where required.  The zip file will include a course bibliography. Physical therapists are responsible for knowing and adhering to their state’s CE deadlines, rules, and regulations. 

Speaker Bios

Lee Ann Sansuchat, PT, DPT, is a board certified pediatric physical therapist who currently works in the Neonatal Intensive Care Unit providing developmental therapy services for premature and medically fragile infants with a variety of diagnoses. She graduated with her Doctor of Physical Therapy degree from Cleveland State University in Cleveland, OH and completed her outpatient pediatric physical therapy residency at Nationwide Children’s Hospital in 2020 and completed her neonatology physical therapy fellowship at Nationwide Children’s in 2021. In the NICU, Lee Ann has a particular interest in research, quality improvement and supporting medically complex infants throughout stages of healing and development.

Diana Hinton, OTR/L, CLC,​ started at Nationwide Children’s Hospital in 1993 after graduating from The Ohio State University School of Allied Medicine with her degree in occupational therapy.  She has worked in the NICU for 32 years and throughout her time at NCH, she has worked in a variety of other settings.  She is a certified lactation consultant and continues to practice in the NICU with special interests in complex feeding including craniofacial diagnoses.

Maria D’Amore, PT, is a Board-Certified Clinical Specialist in Pediatric Physical Therapy and Director of the Neonatal Physical Therapy Fellowship Program at Nationwide Children’s Hospital in Columbus, Ohio. Maria received her degree at The Ohio State University, and during her 30 years of practice, she has been employed by Nationwide Children’s Hospital with pediatric experience in a variety of settings, the last 15 years in Neonatal practice.  Maria has served as Clinical Faculty in the Neonatal Physical Therapy Fellowship Program and is an adjunct Clinical Faculty member at West Virginia University.  Maria lives with her husband in Delaware and has three adult children and one granddaughter.

Courtney Mackert, OTR/L, MOT, CNT, CLC started at Nationwide Children’s Hospital in 2005 and worked on the Inpatient Rehabilitation unit. In 2010, Courtney joined the NICU OT/PT team. She continues to expand her knowledge with this population and completed her NIDCAP training in 2019. Courtney became a Certified Neonatal Therapist (CNT) in 2020. Courtney is a member of the small baby team and has a passion for helping support babies and their families as they start life. 

Disclosures

Diana Hinton, OTR/L, CLC​
Financial Disclosures: No relevant disclosures.
Nonfinancial Disclosures: No relevant disclosures.

Lee Ann Sansuchat, PT, DPT​
Financial Disclosures: No relevant disclosures.
Nonfinancial Disclosures: No relevant disclosures.

Maria D’Amore, PT​
Financial Disclosures: No relevant disclosures.
Nonfinancial Disclosures: No relevant disclosures.

Courtney Mackert, OTR/L, MOT, CNT, CLC
Financial Disclosures: No relevant disclosures.
Nonfinancial Disclosures: No relevant disclosures.

Conflict of Interest
There is no conflict of interest for anyone with the ability to control content for this activity.

Agenda

0:00-2:00 min Introduction to topic and objectives
2:00-25:00 min Pierre Robin Sequence
25:00-45:00 min Osteogenesis Imperfecta
45:00-65:00 min Neuromuscular Conditions
65:00-85:00 min Epidermolysis Bullosa
85:00-90:00 min Learning assessment

Registration information
Members must log into the NANT Hub to receive complimentary access to this course.  Non-members may purchase this course via the Buy Now button above.

For ADA accommodations, please call NANT Customer Service for more information at (866) 999-5524.

Speech-language pathologists may update their ASHA CE reporting preference at any time by accessing their NANT Hub profile.

Cancellation Policy
Click HERE to review NANT’s Course Cancellation Policy.

Continuing Education Information 

AOTA CEUs

National Association of Neonatal Therapists® (NANT) is an AOTA Approved Provider of professional development. Course approval ID# 14035. This Distance Learning-Independent Course is offered at 0.15 CEUs (Intermediate level, Occupational Therapy Service Delivery & Foundational Knowledge). AOTA does not endorse specific course content, products, or clinical procedures.

This course is approved for 1.5 contact hours.

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ASHA CEUs

Learners must complete the entire course in order to receive ASHA CEUs. No partial credit awarded. ASHA CE Provider approval and use of the Brand Block does not imply endorsement of course content, specific products or clinical procedures.
ASHA CE Registry users: NANT will submit your ASHA CEU credit to ASHA on your behalf. ASHA CEUs may take up to 100 days to appear on your ASHA Transcript.

Non-ASHA CE Registry users: Maintain your course records and please keep your registry status current in your NANT account. Update your NANT account with your ASHA number if your registry status changes. NANT is not responsible for tracking your registry usage.

PT CE Credit

This activity is provided by the Texas Board of Physical Therapy Examiners Accredited Provider 2801058TX and meets continuing competence requirements for physical therapist and physical therapist assistant licensure renewal in Texas. This activity is offered for 1.5 CCUs for PTs and PTAs.

The assignment of Texas PT CCUs does not imply endorsement of specific course content, products, or clinical procedures by TPTA or TBPTE.

NANT is recognized by the New York State Education Department’s State Board for Physical Therapy as an approved provider of physical therapy and physical therapist assistant continuing education.

Questions regarding CE credit should be directed to the National Association of Neonatal Therapists at info@neonataltherapists.com or (866) 999-5524.